My doctors aren’t giving me any answers?
I have fibromyalgia (19 yrs), sarcoidosis (1 yr) and kidney infection with gout (2 months). I have been to 3 drs. in the past month and none caught the kidney, gout problem. After many tests, and a MRI and I found the results myself on the internet. Now I’m wondering if the fibro isn’t something else. Two different labs confirmed the sarc. yet it isn’t in my lungs as of yet. I’m so tired of feeling pain and depression. Where do I go from here? One Dr. a specialist at U of M thought most of my pain was in my head! How could he know my pain level unless he could wear it for a day? I’m so humiliated at this point I’m about to give up. I’m following the gout diet protocol and it’s helping slowly. I just don’t know where to go for help that I can trust. Do most Dr’s. distrust their patients?
Filed under: Diet For Gout
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you are right to question teh fms disagnosis–
it is highly overdiagnoised bvy incompetant diocs
teh pain from sarcoidosis could be what you have–as it mimics fms–but is not realfms
many docs label any pain as fms–but its not
its a separate neuro disorder…
just knwo you are not along-
i have such severe anxiety from teh abuse i have suffered from docs..
the old show teh gold girls did a segment on CFIDS–where dorothy tells teh doc off–it would be nice to be able to show that to every idiot doc we are subjected to
most docs have a god complex and expect us to bow down to them–they are copletely disrespectul
tehy say they worked hard and deservea ll teh prestige and financial benefits–i have worked a LOT harder than them–just to live……..they need to be grateful for what they have…
My father is disabled and has more medical problems than anyone I’ve ever known. He’s been to many many doctors and specialists and has been through all kinds of tests I dont even know how many times, over a span of years.
Dont give up! Keep your head up and be strong! There’s got to be someone out there who can tell you something. Keep searching.
Fibromyalgia and a host of other health problems can really be undiagnosed lyme disease. Please read the 5th edition of "The Basics" at http://www.lymepa.org. The only way to know you have lyme is to get an Igenex blood test and have it read by a "LYME LITERATE" doctor. It is NOT an easy test to read. If you contact the people at this website, they can give you a few doctors in your state that you could trust. Do not trust an infectious disease doctor or family doctor. Unfortunately, they are not taught the truth about diagnosing and treating lyme and its co-infections. Please do some research on lymenetflash also. You can search your health problems and get answers. Lyme is the leading cause of all chronic illness. It is epidemic and all 7 members of our family have it to varying degrees. Most lyme victims go to an average of 7 doctors (who think they are crazy or stressed, etc.) before finding the right answer. This is typical. Whenever a health issue seems unusual, you have to think lyme. Good luck.
How frustrating for you!
I’ve been in the same boat for years. I have lupus, fibro, migraines, you name it. I’m in constant pain and I see so many doctors it’s ridiculous. Not to mention the all the medications I have tried. I’ve wanted to give up at times as well. it took YEARS for me to be diagnosed and to find the right doctor for me. Please don’t give up. Search around for different doctors. Join a support group. Ask your friends or someone else you know who has the same issues who they see.
Something that helped me was removing wheat and gluten from my diet, I do daily light stretches whether I feel like it or not, most of the time I do them in bed or in a chair, swimming or just stretching in water helps my muscles, and I take a daily multi-vite and mineral, PLUS more vit E, B6, B12 for the nerve pain I have as well. Of course I have my prescriptions too.
Please find a local support group by checking out your local hospital or university, and network with others to see if you can find a good doctor.
I wish you all the best. Hang in there!